Privacy Policy

Prostate Health Education Network, Inc. Privacy Policy

Last updated on August 25, 2025

The Prostate Health Education Network (“PHEN,” “we,” “our,” and/or “us”) respects your privacy interests and is committed to honoring your preferences. This Privacy Policy (“Privacy Policy”) describes the types of information we may collect from you or that you may provide to us as visitors and/or users of our website https://prostatehealthed.org/ (our “Website”), any patient navigation services or tools we may offer (the “PHEN Patient Navigator”), and any related PHEN services (collectively, our “Services”). It also outlines our practices for collecting, using, protecting, and disclosing that information. PHEN is the sole owner of any information collected on or through our Services.

This Privacy Policy applies to information we collect from or about you, our users, when you:

1. Use mobile or desktop applications to download from our Services.
2. Access or interact with our Website or Services to obtain PHEN information or services.
3. Interact with PHEN advertising on third-party websites.
4. Register for an event, complete online forms, and/or sign up to receive PHEN marketing materials.

Please read this Privacy Policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, please do not use our Services or otherwise interact with PHEN. By accessing, using, or otherwise interacting with our Services, you agree to our collection, use, disclosure, and implementation of the procedures described in this Privacy Policy. Beyond the Privacy Policy, your use of our Services is also subject to our Terms of Use.

This Privacy Policy may change from time to time. Your continued use of our Services after we make changes is deemed to be acceptance of those changes, so please check this Privacy Policy periodically for updates.

Information We Collect About You and How We Collect It

We collect several types of information from and about users of our Services, including:

• Personal Information: Information by which you may be personally identified, such as name, postal address, email address, telephone number, or credit card information.
• Technical Information: Information about your internet connection, the equipment you use to access our Services, and your usage details when accessing our Services.

Information You Provide to Us

Registration Information. When you create an account, fill out forms on our Services, register to use our Services, subscribe to our newsletter, sign up for webinars or events, participate in surveys, post material, or update your preferences, we may ask you for personal information such as your name, mailing address, email address, phone number, social media handles, and your connection to prostate cancer or related issues.

Communications. If you contact us directly, we may receive additional information about you from records and copies of your correspondence. For example, if you contact us with a question or to report a problem with our Services, we will receive your name, email address, phone number, and any message or attachments you may send, along with other information you choose to provide. If you subscribe to our newsletter, we collect information such as your email address. We may track whether you open or click on emails we send you to improve our Services.

1. Survey Responses. If you choose to participate in our surveys, we collect your responses for research purposes.
2. PHEN Patient Navigator. If you choose to use our patient navigator services, we will collect the demographic and health-related information you choose to provide, such as your zip code, age, gender, and prostate cancer patient status, to help offer relevant resources or clinical trial information.
3. Health Information. If you choose to disclose personal health information through our Services (e.g., contacting a PHEN Patient Navigator regarding prostate health concerns), we will collect any health information you choose to provide.
4. Payment Information. If you make a purchase or donation, we will receive the details of transactions you carry out through our Services. You may be required to provide financial information before placing an order or making a donation.
5. User Contributions. You may provide information to be published or displayed (“posted”) on public areas of our Services, or transmitted to other users of the Services or third parties (“User Contributions”). Your User Contributions are posted on and transmitted to others at your own risk.
6. Careers. If you apply for a job with us, you may submit your contact information and resume. We will collect any information you choose to provide in your resume (e.g., education, employment experience). You may also apply through third-party sites like LinkedIn, in which case we will collect any available information from those services

Information We Collect When You Use Our Services

As you navigate through and interact with our Services, we may automatically receive certain information about your equipment, browsing actions, and patterns, including:

1. Usage Information. We automatically receive information about your visits to our Services, including the pages or content you view, searches you conduct, purchases you make, comments or content you post, traffic data, location data, logs, and other communication data, as well as the resources you access and use on our Services. We also track the dates and times of your visits.
2. Device Information. We receive information about the device, software, and internet connection you use to access our Services, including your IP address, operating system, and web browser type.

The information we collect automatically is statistical data that helps us improve our Services and deliver a better, more personalized user experience by enabling us to:

• Estimate our audience size and usage patterns.
• Store information about your preferences.
• Speed up your searches.
• Recognize you when you return to our Services.
• Information from Cookies and Similar Technologies

What are cookies?

A cookie is a small file placed on your computer or device’s hard drive. You may refuse to accept browser cookies by adjusting your browser settings; however, doing so may prevent access to certain parts of our Services. Unless you refuse cookies, our system will issue cookies when you direct your browser to our Website.

Types of cookies include:

• Session cookies: Expire at the end of your browser session, allowing us to link your actions during that session.
  Persistent cookies: Stored on your device between browser sessions, remembering your preferences or actions across multiple sites.
• First-party cookies: Set by the site you are visiting.
  Third-party cookies: Set by a third party separate from the site you are visiting.

Why do we use cookies and other tracking technologies?

We use first-party and third-party cookies for several reasons:

• Essential (Strictly Necessary) Cookies: Required for technical reasons for our Services to operate, such as secure areas. You cannot refuse them without impacting how our Services function.
• Performance and Functionality Cookies: Used to enhance performance and functionality but are non-essential to use. Without these, certain functionality may become unavailable.
• Analytics and Customization Cookies: Collect information to help us understand how our Services are being used and to improve our marketing and user experience.
• Advertising (Targeting) Cookies: Make advertising messages more relevant to you and your interests, prevent the same ad from continuously reappearing, and measure ad effectiveness.

Other Tracking Technologies

We and our third-party partners may use other technologies like web beacons or pixels. These tiny graphics files contain unique identifiers enabling us to:

• Recognize when someone has visited our Services or opened an email from us.
• Monitor traffic patterns and deliver cookies.
  Serve targeted advertisements and measure ad effectiveness.
• Improve site performance and the success of marketing campaigns.
• While you may not be able to specifically reject or disable these tracking technologies, many rely on cookies to function. Therefore, disabling cookies may impair their functionality.

Targeted Online Advertising

We work with advertisers, advertising networks, and analytics companies (“Ad Partners”) that use technologies to collect data about your use of our Services (such as pages visited, ads viewed or clicked) as well as your IP address or device identifiers. This information is used to deliver relevant advertising on our Services or elsewhere.

These technologies may involve placing cookies or web beacons on our Services to track how our Services are used and link the various devices you use. Our Ad Partners may:

• Serve targeted ads on our Website or other sites you visit.
• Report website traffic, statistics, ad data, and interactions with ads.
• Measure the effectiveness of web-based and email ads.

For more information on how Ad Partners collect, use, and share data, and to opt out of certain forms of tracking, please visit:

https://www.aboutads.info/choices/

Network Advertising Initiative

Please note that opting out of targeted online advertising does not mean you will stop seeing ads; rather, these ads may be less relevant to your interests.

How Can You Control Cookies and Similar Technologies?

1. Browser Controls: Most web browsers allow you to control and manage cookies through the browser settings. Please see your browser’s help menu or visit www.aboutcookies.org or www.allaboutcookies.org for more information.
2. Disabling Most Targeted Online Advertising: As discussed, you may opt out of certain targeted online advertising by visiting https://www.youronlinechoices.com. You can also adjust your mobile device settings to limit the use of advertising identifiers for targeted ads.
3. Do Not Track: Our Services do not respond to “Do Not Track” signals because no uniform standard has been adopted. You can learn more about DNT at All About Do Not Track.

Information We Receive From Third Parties

1. Information from Third-Party Services: If you link our Services to third-party accounts (e.g., Facebook, Twitter, LinkedIn, or Google), we may receive information such as your profile information and photo from those services.
2. Background Checks: We may work with third-party partners to perform background checks on job applicants, receiving publicly available information such as criminal history.
3. Research Studies: We may receive information from research partners, investigative sites, and contract research organizations that assist in studying prostate health issues. Refer to your study consent form for details on how your data is collected and processed.
4. Business Partners and Service Providers: We use service providers (e.g., payment processors, analytics) who may share some or all of the data they collect to help us operate, market, and improve our Services.
5. Supplemental Information: We may receive additional information about you from third-party sources, such as credit agencies or public databases, to prevent fraud, deliver relevant offers, and improve our operations.

How We Use the Information We Collect

We use the information we collect from or about you to:

• Provide, maintain, improve, and enhance our Services.
• Personalize your experience on our Services with tailored content and recommendations.
• Understand and analyze how you use our Services, and develop new products, services, features, and functionality.
• Provide you with information, products, or services you request.
• Carry out obligations and enforce rights arising from any contracts, including billing and collection.
• Respond to your inquiries and requests for information.
• Fulfill requests for newsletters or other updates.
• Communicate with you about PHEN programs and Services.
• Allow you to participate in interactive features.
• Fundraise and market to you, including developing promotional materials and events.
• Generate anonymized, aggregate data for reports or research.
• Facilitate transactions, donations, and payments.
• Send you text messages and push notifications, if you opt in.
• Identify and prevent fraud, and respond to trust and safety issues.
• Comply with legal obligations, enforce our Terms of Use, and protect the rights and safety of PHEN, our users, or others.
• For any other purposes disclosed to you at the time we collect your information or with your consent.

How We Share the Information We Collect

We may share or disclose information as follows:

1. Affiliates: We may share information with our subsidiaries and affiliates for any purposes described in this Privacy Policy.
2. Vendors and Service Providers: We share information with third parties who help us operate and support our Services.
3. Marketing: We do not rent, sell, or share information with nonaffiliated companies for their direct marketing unless we have your permission.
4. Ad Partners: We share information with our Ad Partners to deliver relevant advertising as described above.
5. Analytics Partners: We use analytics services like Google Analytics to collect and analyze data on user interactions.
6. Merger, Sale, or Other Asset Transfer: If we are involved in a merger, acquisition, or sale of assets, your information may be transferred to the relevant party in compliance with this Privacy Policy.
7. As Required By Law and Similar Disclosures: We may disclose your information to comply with legal obligations, respond to legal requests, or protect our rights or the rights of others.
8. Consent: We may disclose your information with your permission.

Data Security

We take reasonable measures to protect your personal information. We maintain physical, administrative, and technical safeguards intended to prevent unauthorized use or access. These measures include:

• Secure databases accessible only by authorized personnel through double password-protected systems.
• Strong logical access controls for users and administrators.
• Encryption of personal information in transit.
• Periodic backups of provided personal information.
• Credit card information is not stored by PHEN; instead, we use a secure third-party payment processor (e.g., PayPal.) that employs encryption and other security measures.
• Despite our efforts, no data transmission or storage system can be guaranteed 100% secure. Any transmission of information is at your own risk.

International Visitors

Our Services are hosted in the United States. If you use our Services from the EEA, the United Kingdom, or other regions with data protection laws different from those of the United States, please note that your personal information may be transferred to and processed in the United States (and U. S. laws and regulations which govern web, data, communications and information, etc., use shall take precedent over any other country/ nation’s laws relative to PHEN services offered.) By providing information on or to our Services, you consent to such transfer, processing, legal application, and enforcement.

Additional Policies

Certain sections of our Websites, mobile applications, or other digital properties may contain additional disclosures related to privacy. Any testimonials, contests, or blog postings you submit may be subject to additional terms.

Children’s Privacy

Our Services are not intended for children under 13 years of age. We do not knowingly collect personal information from children under 13. If you are under 13, do not provide any information on our Services. If we learn that we have collected or received personal information from a child under 13 without verification of parental consent, we will delete that information. If you believe we might have information from or about a child under 13, don’t hesitate to get in touch with us as described below.

User Contributions

Some of our Services may allow you to submit content (e.g., testimonials, comments, videos). Any information you submit may become public. Please exercise caution when deciding to disclose any personal information in these areas. We cannot prevent others from using such information in a way that may violate our Privacy Policy, the law, or your personal privacy and safety.

Links to Third Party Our Services may contain links to third-party websites, products, or services. We are not responsible for the privacy practices of these third parties. If you visit these sites or use their services, you should review their privacy policies.

Updates to the Privacy Policy

We may update this Privacy Policy from time to time by posting a new version on our Website. The revised version becomes effective upon posting. You can determine when this Privacy Policy was last revised by checking the “Last Updated” date.

Managing Communication Preferences

If you have opted into our marketing communications, we may send you email or direct mail regarding our Services or related information. You may opt out of receiving promotional messages at any time by:

• Printed Materials: Writing to us at the address in the “Contact Us” section below with your name and mailing address as it appears on the marketing materials.
• Emails: Clicking the unsubscribe link in the email you received or emailing us at the address in the “Contact Us” section below.

Please note that you may still receive administrative communications if you opt out of promotional messages.

Update Your Information or Pose a Question

You can update your account or profile information through your PHEN account settings. If you have questions about your privacy on the Services or this Privacy Policy, please contact us using the information below.

Contact Us

If you have any questions, comments, requests, or concerns about this Privacy Policy or other privacy-related matters, please email us at:

info@prostatehealthed.org

Or write to us at:

Prostate Health Education Network (PHEN)

500 Victory Rd, 4th Floor
Quincy, MA 02171

If you would like instructions on accessing or correcting inaccuracies in the personal information PHEN has collected about you online, please send an email, along with your first and last name, to info@prostatehealthed.org.